You’re not alone: connect with others living the ADH1 journey.
ADH1 (autosomal dominant hypocalcemia type 1) is a genetic form of hypoparathyroidism characterised by low blood calcium levels.1
Educational Resources
Patient information leaflets available in a range of languages from the European Society of Endocrinology.
It is provided for information only and is not a substitute for your doctor’s advice.
Patient Organizations and support groups across Europe
Connecting with these organizations can provide valuable support, information, and community for individuals living with ADH1 across Europe.
United Kingdom
Parathyroid UK
France
Hypoparathyroidisme France
Germany
Netzwerk Hypopara
Spain
AECAT (Asociación Española de Cáncer de Tiroides)
Italy
APPI (Associazione Per i Pazienti affetti da Ipoparatiroidismo)
Denmark
Information can be found on the Danish Endocrinological Society’s website
Norway
hypoPARA NORGE
Romania
Hipoparatiroidism România
The patient organizations listed on this page are independent organizations. Listing them is for information only and does not imply endorsement. BridgeBio is not responsible for the content of their websites or activities.
Take action:
if you experience symptoms of low blood calcium or hypoparathyroidism, or you have a diagnosis of hypoparathyroidism with an unknown cause, speak with your doctor about genetic testing.
Eligibility, access and reimbursement of genetic testing may vary from country to country. Your doctor can advise you about options available in your country.
Low calcium, big impact
Unlock the Mystery: is ADH1 the key to understanding your hypocalcemia symptoms?
Read more
How is ADH1 diagnosed?
Seeking answers? Discover how an ADH1 diagnosis could change everything.
Read more
References
- Roszko et al. J Bone Miner Res. 2022;37(10):1926-1935